Harley W's quilt    (Quilt Completed)

Thank you

Harley returned home from school today to a parcel delivered from you amazingly wonderful people , he was so excited to open it to find inside the most wonderful gift his Love Quilt and a lovely keepsake card!! Harley was so excited we had to take some pictures to show you how happy and thrilled he is he loves space , we want to Thank you from the bottom of our hearts for all the work and attention to detail that has gone into this quilt it truly is amazing and I'm sure in the coming months when he needs Open Heart Surgery this will bring him great comfort so a BIG THANK YOU From Harley xx

Finished photos

Individual squares

Card

Stitched by: Nicola Hargreaves

Biography

Harley has an elastin gene mutation which affects his heart & has caused him to have severe obstruction to both blood flow to his body and his lungs. The expectation is that his condition will get worse as time goes on, and whilst he seems relatively stable this is a condition that will often result in death in childhood. This can happen very suddenly due to arrhythmias.
Harley is very limited in his exercise capabilities and tires easily. Harley is under 3 monthly observations, he cannot do any physical activity and finds this difficult, being 7 he just wants to be like everyone else. He is such a happy caring and thoughtful little boy who is cheeky and witty. Harley finds it difficult to regulate his core temperature so when
hot he becomes clammy and passes out, or if it's too cold he has blue episodes so we need to be extra careful and wrap up warm.