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LoveQuiltsUK - Harley W's quilt

Harley W's quilt    (Quilt Closed)

Illness: Supravalve aortic stenosis and bilateral branch pulmonary artery stenosis

Theme: Space

Date opened: 17th Apr 2019
Date closed: 18th Apr 2019
Deadline: 26th Aug 2019

Photo of Harley W

Child Interests

Harley loves space, football, superheroes and motorbikes.
His favourite colour is blue


Harley has an elastin gene mutation which affects his heart & has caused him to have severe obstruction to both blood flow to his body and his lungs. The expectation is that his condition will get worse as time goes on, and whilst he seems relatively stable this is a condition that will often result in death in childhood. This can happen very suddenly due to arrhythmias.
Harley is very limited in his exercise capabilities and tires easily. Harley is under 3 monthly observations, he cannot do any physical activity and finds this difficult, being 7 he just wants to be like everyone else. He is such a happy caring and thoughtful little boy who is cheeky and witty. Harley finds it difficult to regulate his core temperature so when
hot he becomes clammy and passes out, or if it's too cold he has blue episodes so we need to be extra careful and wrap up warm.


1.Spaceman with flag from LQ filesStitcher: Jan , Lincs, UK
In Progress

2.XStitch magazine - issue 6 Rainbow SaturnStitcher: Joanne Heap, Liverpool, UK
In Progress

3.Stoney Creek final frontiers solar system - all the planets joined by orbitsStitcher: Leanda Vickers, Oldham , England
In Progress

4.Climbing Goats Our sunStitcher: Eileen, Newcastle, UK
In Progress

5.Pattern by stitching land on Etsy Saturn Stitcher: Jackie, Corby, UK
In Progress

6.Space square by Elsie Irwin in the files Stitcher: Helen Irwin, Hull, UK
In Progress

7."Space Odyssey" pattern of a galaxy, by Emma Congdon, Cross Stitch Crazy 237 Galaxy Stitcher: Katie, York, England
In Progress

8.Oh Spaceboy - Etsy Space scene with a rocket, planets, alien, astronautStitcher: Michelle Hillier, Sault Ste Marie, Canada
In Progress

9.My own pattern. Astronaut on the moon with the earth and alien/spaceship in the background.Stitcher: Christine Donaghy , Belfast , UK
In Progress

10.Baby and kids, motifs by Maria Diaz Series 2 ISBN 978-605-5647-38-5 Rockets and astronautsStitcher: Sally, Hull, UK
In Progress

11.Gemma at Buzy Bobbins Rocket ship blasting into space in circle with rainbow behind. Will colour block the circle in blueStitcher: Kaz Bowen, Wakefield, UK
In Progress

12.Label Stitcher: Gail, Lochgelly, Scotland
In Progress

Squares received

None yet. (Quilt opened on 17th Apr 2019)

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