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LoveQuiltsUK - Ella R's quilt

Ella R's quilt    (Quilt Closed)

Illness: Dravet syndrome

Theme: Fairies/butterflies/rainbows

Date opened: 27th Jul 2019
Date closed: 27th Jul 2019
Deadline: 26th Nov 2019

Photo of Ella R

Child Interests

Any water play!
Fair rides, got to be fast though!
Fairies, butterflies, rainbows, girly.
Ella doesn't have a favourite colour but loves bright colours! Pink, yellow, orange, purple, red, blue,green - any bright colour!


Ella had her first seizure at 8 weeks old, with them becoming more frequent weeks later. Ella went through test after test as a baby and they all came back negative. In June 2016 genetics came back with SCN1A....Dravet syndrome. Our whole world was turned upside down.
To this day Ella has had over 300 seizures and spent many nights in hospital. Watching your little girl lifeless and not responding to medication and seizing for hours continuously is utter heartbreaking. Ella takes daily medication but still doesn't have full seizure control. We are currently waiting for a referal for VNS.
Ella has been through more in her little few years than most adults go through in their life time. She doesn't let it get in her way, she wakes up every morning and carries out her mischievous tricks! There isn't a day goes by that you don't see a smile on her face.
Ella has a younger sister called Daisy who secretly she adores! She has a true sisterly bond that involves Ella pushing her over - like any normal big sister really!
Ella has just completed her first year of school at our local SEN school, we were very lucky to have an amazing one literally on our doorstep. We didn't think she would cope with full time hours, however, she did and proved us wrong and absolutely loved it!


1.The Tulip Fairy Flower Fairies kitStitcher: Kate, Leics, UK
In Progress

2.Butterfly heart in rainbow colours from Etsy Stitcher: Grace Bowles, Southampton , UK
In Progress

3.The Eyebright Fairy. Letter E DMC Flower Fairies A-Z Chart BookStitcher: Barbara, Midhurst , UK
In Progress

4.Colourful Butterfly by Alexstitches.comStitcher: Jodi Maple, Niagara Park, Australia
In Progress

5.From LQ Files I can sing a rainbowStitcher: Nicola, St Albans, UK

6.Freebie pattern from Cross Stitching Guild, by Michaela Learner. Mosaic style single butterfly. I'll stitch it in DMC 4030 (shades of aqua/lilac) and add a scattering of simple flowers in bright colours in the corners.Stitcher: Janet T, South Wales, UK
In Progress

7.Climbing Goat Designs. Rainbow coming out of a cloud. Stitcher: Diana, Sussex, UK
In Progress

8.Ultimate Cross Stitch Fairies Picture made with Lucie Heatons\' fairy designs Stitcher: Jill Smith, Taunton, England
In Progress

9.Climbing Goat Designs Rainbow FairyStitcher: EE(Beth)Filmer, Adelaide, Australia
In Progress

10.World of cross stitching mag Yellow butterfly Stitcher: Leanne Malcolmson, Romsey, UK

11.Etsy pattern Realistic Admiral Butterfly, with added border if it looks too small.Stitcher: Ellie, Leicester, UK
In Progress

12.Label Stitcher: Heather, Littleborough, England

Squares received

Cross stitch square for Ella R's quilt
Stitched by: Heather
Submitted: Aug 2019

Cross stitch square for Ella R's quilt
Stitched by: Nicola
Submitted: Aug 2019

Cross stitch square for Ella R's quilt
Stitched by: Leanne Malcolmson
Submitted: Aug 2019

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