At birth we discovered Hunter was born with oesophageal atresia with tracheoesophageal fistula, a life threatening condition where the oesophagus doesn't connect to the stomach. Instead his stomach and trachea were joined together. He underwent major reconstructive surgery at 1 day old, followed by multiples surgeries through his first 18 months of life to repair the defect.
During this time he was not meeting milestones, not holding his head up, rolling or looking at us. At 6 months he was diagnosed with a visual impairment and a hearing impairment. At 19 months he began to have severe seizures and was diagnosed with epilepsy.
Now, at 3 years old, Hunter is a very happy little boy. Developmentally he is still very much like a newborn, he is unable to lift his head, sit or bear weight through his legs. He has never eaten and has all food and medicine through a feeding tube. His seizures are still uncontrolled and often require emergency treatment.
During his 3 years of life he has undergone extensive genetic testing but so far there is no explanation for his condition.