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LoveQuiltsUK - Massine K's quilt

Massine K's quilt   (Quilt Coming Soon)

Illness: Quadaplygic,hydrocephalus,tracheostomy,peg fed,chronic lung disease,reactive hypoglycaemia,eosinophilic colitis

Theme: Trains

Quilt will open soon, keep checking back!
Photo of Massine K

Theme details

Trains - Also likes balloons if we can fit some on the label.

Child Interests

Mr Tumble.


Massine was born twin one at 25wks and from birth suffered PVL, hydrocephalus and numerous infectious diseases. This resulted in numerous surgeries - 64 in total.
He had meningitis twice, staph of the brain, heart surgery, lung surgery, multiple shunt blockages, strangulated umbilical hernia, GERD, eosinophilia, epilepsy, dystonia, hip dislocation and a curved spine .
Massine is now completely deaf and blind, mute, nil by mouth, peg fed, quadriplegic and tracheostomy/oxygen dependent. He has failure to thrive due to his eosinophilic colitis and eosinophilia of the throat.

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