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LoveQuiltsUK - Willow G's quilt

Willow G's quilt   (Quilt Coming Soon)

Illness: Potocki-Lupskui Syndrome

Theme: Baby Dolls and Disney Princesses

Quilt will open soon, keep checking back!
Photo of Willow G

Theme details

Baby Dolls and Disney Princesses - Dolls as in the kind that kids like to nurse (not Russian dolls etc)

Child Interests

Willow loves dolls and her favourite colour is pink.


Willow was born 6 days past her due date weighing 6lb. I noticed within the first week of her life she struggled to feed and didn't gain weight. We had many trips to the Dr and fast forward one year Willow was one, still very small for her age and only just started weaning. Her health around this time wasn't good, she would sleep up to 23 hours a day and she started having lots of absence seizures. I took her back to the GPS and she was referred to a paediatrician which lead to Willow having blood tests. Six weeks later the results were back and I was told she had Potocki Lupski Syndrome.

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