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LoveQuiltsUK - Leo S's quilt

Leo S's quilt    (Quilt Closed)

Illness: Interferon gamma immune deficiency and chronic recurrent multifocal osteomyelitis

Theme: Fire engines, Lightning McQueen and Superheroes

Date opened: 23rd Nov 2019
Date closed: 11th Dec 2019
Deadline: 26th Mar 2020

Photo of Leo S

Theme details

Fire engines, Lightning McQueen and Superheroes - Especially Spiderman. Red is his favourite colour.

Child Interests

Leo loves Ryan's world, his favourite colour is red. He also enjoys cars fire engines and spiderman


Leo was born at 36 weeks after I had a blood clot that went to my lungs. He was really ill when he was born and eventually he was diagnosed lactose and dairy intolerant at 2 months after being hospitalised for 3 weeks. He got better. At 2 he started falling and screaming in pain and nobody knew why. We took him back and forth to 4 different doctors all told us it was growing pains. Take calpol he will be fine. By the time he was 4 he could barely walk,he was loosing so much weight and wasnt growing in height. He was in so much pain he was hospitalised 4 times and still nobody knew what was wrong. Last year he got worse and he was rushed to Aberdeen children's hospital where they told us to prepare for the worst. We started planning his funeral in july. 21st august after an mri scan and 5 biopsies they told us he has a rare genetic immune disorder and crmo. He is 1 of 40 in the world. Trial treatment was started straight away,half went threw a Hickman line the other half was done by ng tube. Thankfully he is a fighter and by october he was up and about playing,smiling and showing us all he was better. We got to take him home a week before Christmas. He is doing well atm tumours are shrinking, he gets injections 3xs a week for life at hospital for his immune deficiency and his meds have been reduced enough to remove the Hickman line. Hes not yet in remission but he continues to fight and even managed to go to school with some help. Unfortunately now the tumours have made him incontinent but he smiles threw. We are hopefully he will get a good break before he gets more pain etc but treatment is working well. We cant thank the hospital enough for saving our boy and letting him be here with us x


1.L Q files Spider-Man close up by BethStitcher: Val Gilbert, Coningsby , UK

2.From LQ files Lighting McQueenStitcher: Paula Dewar, Glasgow, Scotland
In Progress

3.FromVervaco kit of Cars Alphabet. Kit# 2575/70.995 Lightning McQueenStitcher: Marilyn, Birmingham, UK
In Progress

4.Zindagi Designs from Etsy. Fire truck. Stitcher: Diana, Sussex, UK
In Progress

5.Own Design Fire EngineStitcher: EE(Beth)Filmer, Adelaide, Australia
In Progress

6.From files by Beth Filmer Spiderman breaking through a wallStitcher: Linda Cropper, Atherstone, England
In Progress

7.LQ Files Wolverine close up no backstitchStitcher: Nicola, St Albans, UK

8.LQ Patterns List Captain America’s ShieldStitcher: Caitlin, Swansea, UK
In Progress

9.Spiderman 2 from love quilt files Stitcher: Natasha, Norfolk, Uk
In Progress

10.Spiderman from my own filesStitcher: Sylvia, Clacton, England
In Progress

11.LQ files HulkbusterStitcher: Mark Grogan, Oldham , UK
In Progress

12.Label Stitcher: Stephanie Rose, Bo'ness, Scotland
In Progress

Squares received

Cross stitch square for Leo S's quilt
Stitched by: Val Gilbert
Submitted: Dec 2019

Cross stitch square for Leo S's quilt
Stitched by: Nicola
Submitted: Dec 2019

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