BiographyZak was born at 29 weeks weighing 2lbs 12oz. He spent 6 weeks in hospital with the help of breathing support and a feeding tube. Zak carried on being poorly when he left the hospital. He kept getting bronchiolitis even in summer, struggled to feed and struggled to keep fluids down. He was diagnosed with severe reflux disease with tests showing he had damaged the lining of his stomach. He had a Nissen fundoplication and a gastrostomy button placed in his tummy to help him gain weight.
When Zak was about 2 years old he was diagnosed with osteogenesis imperfecta, known as brittle bone disease. His new bones that grow lack in collagen which makes your bones strong so his can break easily. He has iv treatment through his portacath every 3 months for 2 days at a time. The infusion takes 5 hours each day.
Zak has, and still does, spend a lot of time in hospital for various of his illnesses so misses a lot of school. He really struggles and is very behind in his learning. Zak spends a lot of time in his wheelchair due to breaks and fatigue.
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