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LoveQuiltsUK - Jacob A's quilt

Jacob A's quilt    (Quilt Closed)

Illness: Dravet Syndrome

Theme: Nursery Rhymes

Date opened: 25th Jul 2020
Date closed: 27th Jul 2020
Deadline: 26th Oct 2020

Photo of Jacob A

Theme details

Nursery Rhymes - Especially wheels on the bus, old McDonald, 5 little ducks, 5 monkeys in a tree.

Child Interests

Jacob's favourite colour is red.

He loves watching nursery rhymes, especially wheels on the bus, Old McDonald, 5 little ducks, 5 monkeys in a tree.
If a bus is sewn can it please be yellow.


Jacob was born healthy at 37 weeks. He was a happy baby and content. At four months old we noticed him making jerking movements in his crib and realised he was having a seizure. The seizure stopped after 1.5 and a cocktail of emergency drugs. We remained in hospital for 10 days while various tests were conducted. We were discharged with the possibility it could have been a one off. However, this wasn't the case and for the next 9 months we had countless ambulance trips and stays in hospital due to prolonged seizures.
Jacob spent his first birthday in intensive care after a status epilepticus which lasted 3.5 hours and for his own safety, and to stop the seizure, he was put into a coma and placed on a ventilator. He remained on the ventilator for over a week. During this time the hospital conducted genetic tests which showed he had Dravet Syndrome, a rare and catastrophic form of epilepsy.
Along with seizures Jacob has a global development delay, mobility issues, reduced appetite (and now has a feeding tube), risk of SUDEP and is non-verbal. He is on 5 anti-epileptic drugs but his condition is drug resistant so these medications will be added to or removed over time. The medication does not stop the seizures. He has been placed on a ventilator and admitted to paediatric intensive care a further 7 times over the last 4 years and regularly spends time in hospital due to prolonged seizures. However, through all this he smiles, he enjoys school, loves playing with his older brother, dancing to nursery rhymes and although he lost skills he has re-learned most of them and is happy.


1.Mother Gooses words of wit and wisdom Little Jack HornerStitcher: Janet T, South Wales, UK

2. Humpty Dumpty Humpty DumptyStitcher: Kate Roberts, Shefford, UK
Received The Wheels on The Bus text and picture of a yellow busStitcher: Karen Radford, Shillington, Hitchin, Bedfordshire
In Progress

4.Cross stitch collection 2014 Old woman who lived in a shoeStitcher: Laura, Thetford, UK
In Progress

5.Own design Old MacDonald, a cow and a pig with some words from the songStitcher: Ann, Billericay, UK
In Progress

6.Digi cross stitch via etsy. Twinkle twinkle little star.Stitcher: Jenny Elkington, Boston, UK
In Progress

7.Cross stitch wonders Hey Diddle DiddleStitcher: Eileen, Newcastle, UK
In Progress

8.Etsy Hickory Dickory DockStitcher: Marie, Yeovil, UK
In Progress

9.Jo Verso's Cross Stitch Gifts For Children The little old woman who lived in a shoe. Red shoe house filled with children. Stitcher: Emma, Stevenage, UK
In Progress

10.Nursery Rhymes by Gloria and Pat Old Mother HubbardStitcher: Jan G, Hull, UK
In Progress

11.5 little monkeys design out together using charts from WOXSStitcher: Sarah, Gosport, UK
In Progress

12.Label Stitcher: Sandra, Shefford, England

Squares received

Cross stitch square for Jacob A's quilt
Stitched by: Sandra
Submitted: Jul 2020

Cross stitch square for Jacob A's quilt
Stitched by: Janet T
Submitted: Aug 2020

Cross stitch square for Jacob A's quilt
Stitched by: Kate Roberts
Submitted: Aug 2020

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