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LoveQuiltsUK - Alfie G's quilt

Alfie G's quilt    (Quilt Completed)

Born:2018
Illness: 1p36 deletion syndrome

Theme: Superheroes

Quilt delivered: 8th Aug 2020
Photo of Alfie G

Thank you

Coming soon...



Finished photos

Coming soon...


Quilted by: Seren

Individual squares

Cross stitch square for Alfie G's quilt
Stitched by: C McDonald (+)
Submitted: Jun 2020

Cross stitch square for Alfie G's quilt
Stitched by: C McDonald (+)
Submitted: Jun 2020

Cross stitch square for Alfie G's quilt
Stitched by: Comfort Pillow Group (+)
Submitted: Jul 2020

Cross stitch square for Alfie G's quilt
Stitched by: Comfort Pillow Group (+)
Submitted: Jul 2020

Cross stitch square for Alfie G's quilt
Stitched by: Comfort Pillow Group (+)
Submitted: Jul 2020

Cross stitch square for Alfie G's quilt
Stitched by: Heather (+)
Submitted: Jun 2020

Cross stitch square for Alfie G's quilt
Stitched by: Jill Smith (+)
Submitted: Jun 2020

Cross stitch square for Alfie G's quilt
Stitched by: Jodie Balaam (+)
Submitted: Jul 2020

Cross stitch square for Alfie G's quilt
Stitched by: Jodie Balaam (+)
Submitted: Jul 2020

Cross stitch square for Alfie G's quilt
Stitched by: Leanda Vickers (+)
Submitted: Jun 2020

Cross stitch square for Alfie G's quilt
Stitched by: Nicola (+)
Submitted: Jun 2020

Cross stitch square for Alfie G's quilt
Stitched by: Seren Senior (+)
Submitted: Jul 2020


Card

Card for Alfie G

Biography

Alfie was born by emergency c-section at term due to distress. We already knew he had a hole in his heart from the 20 week scan. He was in NICU for a week with feeding difficulties. Three weeks after he was born we got a call to go back to the hospital to discuss some tests which were done during his stay on NICU. This is when we got the diagnoses of 1P36 deletion syndrome which comes with a lot of issues. Visual and hearing problems, heart defects, epilepsy, global delay, kidney problems, low muscle tone (the list goes on).

At 9 weeks old Alfie had his first open heart surgery. A PA band was placed and Alfie seemed to be doing very well except for feeding. He was too tired to feed and using too many calories so a NG tube was placed. Two weeks after surgery he started having seizures and was diagnosed with epilepsy. In 2019 he had his first heart attack and was transferred to PICU in Southampton where he went on to have another two. We spent 6 months in PICU as he lost oxygen to his bowel and brain. He had to have bowel surgery and a stoma bag fitted and a brain MRI showed he had suffered brain damage which has affected his vision.


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