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LoveQuiltsUK - Edith W's quilt

Edith W's quilt    (Quilt Closed)

Illness: Cystic Fibrosis

Theme: Flowers, hearts and butterflies

Date opened: 5th Aug 2020
Date closed: 7th Aug 2020
Deadline: 26th Nov 2020

Photo of Edith W

Child Interests

Dancing, gymnastics, rainbows, hearts, pastel and sea colours, flowers, butterflies, the sea, swimming, Brownies


As our firstborn and with no indications during pregnancy, it was a complete shock to be called into the hospital when our daughter was 3 weeks old and told that she had been diagnosed from the heelprick, with the inherited life limiting condition Cystoc Fibrosis. Although I knew what the condition was, neither I nor my husband had any idea what this would mean for our daughter or how it would change our lives so fundamentally. Shock and fear first hit, then the guilt we'd 'given it' to her. In hindsight, in the first 3 weeks there were signs; the inability to feed the first few days she was born as she was so lacking in energy, the multiple feeding soon as she did start taking milk, the smelly, explosive nappies and the weight gain was not as expected.

Edith was quickly given pancreatic enzymes and vitamin supplements. We were taught manual physio to clear her lungs and nebulisers soon followed. Edith coughs, and clears her lungs a lot, especially at night when flat which disrupts her sleep and fatigues her daily.

Edith needs to eat a LOT, and struggles to be at a normal weight. She gets continual lung infections and has multiple antibiotics and several 2 week hospital stays for IV antibiotics, a Bronchoscopy and intensive physio to clear her lungs and infections. Edith's daily regime is over 40 tablets and intensive treatments and she has to miss school and many activities her friends are allowed.


1.AnimalCrossStitch Etsy Flower heart Cross Stitch Pink and purple Flowers Stitcher: Alisha, Birmingham, UK
In Progress

2.Climbing goats designs 9 different mini hearts Stitcher: Paula Dewar, Glasgow, Scotland
In Progress

3.DMC Floral heart Floral heart and butterfliesStitcher: Heather, Littleborough, England
In Progress

4.Coeurs D'Isa Butterfly Heart.Stitcher: Leanda Vickers, Oldham , England
In Progress

5."Hearts & Butterflies" Designer: Gail Bussi Cross Stitch Crazy mag 2011 Heart-shape design formed from butterflies and flowersStitcher: Sharon, Kenilworth, UK
In Progress

6.MotherBeeDesigns. Heart with two butterflies sitting on top.Stitcher: Anne, Sandefjord, Norway
In Progress

7.Floral Beauty in Cross Stitch Susan Bates floral heartStitcher: Jan S, Enid, Oklahoma, USA
In Progress

8.New Stitches magazine no. 23 A pair of Red Admiral butterfliesStitcher: Sue Torode, Farnborough, UK
In Progress

9.LQ files Spring wreathStitcher: Claire Glover, Andover, UK
In Progress

10.WOXS Issue 254 Heart collage of flowersStitcher: Ann, Billericay, UK
In Progress

11.Heart in pastel colours Stitcher: Nicola, Elland, UK
In Progress

12.Label Stitcher: Jenny Elkington, Boston, UK
In Progress

Squares received

None yet. (Quilt opened on 5th Aug 2020)

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