Megan D's quilt    (Quilt Completed)

Thank you

Thank you for her beautiful quilt, she has just had surgery to reconstruct her foot so she can carry on using her standing frame. She has a pot on to the top of her leg for another 6 weeks. She goes back to theatre in 2 weeks so she will take her quilt with her.

Her favourites have to be stitch and the bee! She loves watching the hive. ?

Finished photos

Individual squares

Card

Stitched by: Deborah Desmond Clarke

Biography

Megan was born at 37 weeks and at first she wouldn’t feed. A few days later the paediatrician noticed that she had a cleft palate.

Megan never reached any of her milestones. Megan was my second child and I knew there was something wrong. The consultant that repaired Megan's cleft at 9 months old agreed to take some bloods while she was under anaesthetic. Just before Megan‘s first birthday we got the phone call that Megan had a rare chromosomal disorder. It wasn’t a total shock as I knew there was something wrong. Megan then started to have all the checks, she was diagnosed with ACC; the two sides of Megan's brain are not connected.

Megan started to have seizures. She had developed a curve at the bottom of her spine. She’s currently waiting complex spinal surgery.


Megan has a hearing and vision impairment and is registered partially sighted. Megan never thrived and struggled to feed and put on weight due to the cleft. She had a NG tube fitted then a peg and now she’s got a button. Her weight was static. When she went to surgery for her button the consultant started to investigate this. Megan was then diagnosed with coeliac‘s disease. Once we changed her diet she started to put on weight.

Megan has kidney damage and is on medication for this and is currently under investigation due to swelling. Megan has had a number of surgeries and she is awaiting another surgery for her right foot and leg; she’s had the left done already.

Due to Megan's blood disorder she has a weak immune system so she picks up everything and takes about two months to get over a chest infection. Megan also suffers with reflux so needs to take care during the night.

Megan has to take a number of medications throughout the day and relies on adults for all her care 24/7.