Lennie E's quilt    (Quilt Completed)

Thank you

We want to say a huge thank you to all the stitchers who made Lennie's quilt. He loves it

Finished photos

Individual squares

Card

Stitched by: Kaz Bowen

Biography

Lennie was born and we had no idea he was ill. At his newborn check the Dr detected a heart murmur and said he would need to stay in overnight to be checked again in the morning, it was still there the next day. Because he was feeding well they sent us home with a clinic appointment for 3 weeks later.
We attended the scan and the sonographer went quiet for the whole hour. He told us the easiest way he could describe it was Lennie's heart was back to front. As he was feeding well they were happy to refer him to Birmingham Children's Hospital in the next couple of weeks. It was decided when he was 4 months old he would have his first open heart surgery to place a band on his pulmonary artery to help train the weaker side of his heart for an operation which would re-plumb his heart the right way.
All went well and at 19 months old they decided it was the right time to do that big operation. He went through it well and appeared to be fine for about 4 months, then he became tired and off his food. After 6 weeks we took him to Birmingham, within 5 minutes of his echo his consultant was called and we were admitted to the ward. The next morning his consultant asked to speak to me and said he was in end stage heart failure and surgically there was nothing to be done other than a heart transplant. He has remained in hospital since due to being on an iv medication to keep his heart working. We were accepted on the urgent transplant list on Christmas Eve 2019 and on 19th September 2020 we had a video call from Great Ormond Street to say he had progressed up the list enough to start getting offers when a suitable donor is available.