Jodie-Leigh's quilt    (Quilt Completed)

Thank you

Omg ???? thank you to everyone who made this gorgeous quilt for Jodie-Leigh. Every square is absolutely stunning. Thank you so much for all the love and time that went into making this for her. She keeps hiding and pulling it over herself. She has been playing peek a boo and roaring at me. My newsfeed is full of blurry, funny photos. Already bringing lots of smiles, laughter and joy. Thank you so, so much. My little 20month old TinkerBell is still having frequent hospital appointments and I'm thankful that she will have something to bring her comfort on her journey xxx

Finished photos

Individual squares

Card

Stitched by: Leanne Malcolmson

Biography

Jodie-Leigh was born full-term and a healthy weight but has had ongoing monitoring and growth checks for height and weight. She is now 14 months and still in 3-6 month clothing only just recently weighing 16lbs. She is small but mighty. Due to this we call her Tinkerbell. We also nickname her Baby Taz as the only sound she made until her birthday was a funny growl.
Throughout her first year of life she has and still is struggling to meet any of her milestones. We are working alongside dieticians, physio and OT's to promote her physical development. These major concerns combined with her growth and weight meant she was diagnosed as failing to thrive. They became concerned that she may have mild cerebal palsy but this is not yet confirmed. Due to a few minor birth defects (that are unrelated) they now suspect other chromosome abnormalities so she is under genetic investigations. She was also unfortunately diagnosed with neurofibromatosis (the same condition as her older brother) when she was 2 months old. This is a progressive condition that can cause tumours to grow along the nerves in addition to various other complex symptoms. She will require ongoing observations due to this.
Life has certainly been a roller-coaster of emotions after having her. She is such a happy, content little girl but the struggles of not having all the answers right now has put a lot of emotional strain on me. It will be fantastic for her to find comfort and love in her own special blanket moving forward with her journey. Thank you