Evie A's quilt    (Quilt Completed)

Thank you

Just to say we've received Evie's beautiful quilt today thank you so so much it's perfect. Here's a picture for you.

Finished photos

Individual squares

Card

Stitched by: Leanda Vickers

Biography

Evie was born via emergency c-section due to the doctor not detecting a clear heartbeat. Despite this everything seemed ok when she was born. When Evie reached the age of 5 months she needed her first pair of glasses due to a squint detected in both eyes. She sadly had her first epileptic seizure when she was 9 months old and was diagnosed at 10 months. She continued to have a number of severe and prolonged seizures all of which lasted over an hour resulting in long stays in A&E.

In 2016 Evie had a horrific seizure which ended with her having to be intubated and taken onto intensive care. She woke a week and a half later having lost her ability to sit up, eat and she didn’t appear to recognise myself or her dad, she was very distressed. We spent a further 5 months in hospital undergoing hundreds of tests. Evie’s MRI scans showed she has significant brain shrinkage and a probable neuro-metabolic condition for which we are still awaiting a diagnosis. We were sadly told due to the extent of her brain shrinkage that she wouldn’t live for very long.

Thankfully Evie is still here nearly 6 years on and we have a partial diagnosis which explains some of Evie’s condition but not all. The main thing is Evie is a happy little girl who loves life and we make the most of this every day.