Thank youPoppy received her quilt today, she absolutely loves it, it's going straight on to her bed, it is beautiful and we can't thank you all enough, it's arrived at the perfect time as we all have Covid so it has really brightened our week
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BiographyWhen Poppy was born a tiny 4lb 12oz the doctor said she had some signs of Down Syndrome. She had open heart surgery at 6 months and was home 4 days later surprising everyone. She has grown into a bright, happy, cheeky, fun and loving girl who is feisty and determined.
When she was 5 she started complaining of pain in her knee, she then fell off the bed and fractured her ankle. When she was still limping months later we took her to her paediatrician and she referred us to rheumatology. In December 2020 Poppy was diagnosed with juvenile arthritis in her knee, toes, ankle, fingers, wrist and jaw. She started steroids which made her gain 10kg in 10 weeks. She was then put on methotrexate (low dose chemo) but that made her very sick and she had to have monthly blood tests. After 8 months she was changed to etanercept and it’s working fantastically. She has injections twice a week and takes it in her stride (she actually loves the nurses coming to administer them).
Poppy loves school, her teacher says she is a delight and always wants to help.
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