BiographyLola Jennifer was born 5 weeks early in Inverness in 2015 weighing 5lbs 4oz. She spent some time in Raigmore Hospital in their special care baby unit.
It became obvious at 6 months she wasn’t hitting developmental milestones.
At this time Lola wasn’t able to sit up, wasn’t properly weaned or talking. Doctors thought she had leukodystrophy (a life limiting condition). Several months went by and at a check-up they did a complete 180 - Lola was making progress and things started to look up.
However, Lola is now almost 8 and has been diagnosed with dyskinetic cerebral palsy, alongside an undiagnosed complex genetic duplication.
In January of 2018 Lola started to talk, she can now crawl as well. Lola has the best sense of humour I’ve ever known in a child, always alongside a huge smile. She’s very content and nothing ever gets her down.
She is confined to a wheelchair.
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