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LoveQuiltsUK - Billy S's quilt

Billy S's quilt    (Quilt Completed)

Born:2014
Illness: Duchenne Muscular Dystrophy

Theme: Space

Quilt delivered: 21st May 2025
Photo of Billy S

Thank you

Coming soon...



Finished photos

Coming soon...


Quilted by: Mary

Individual squares

Cross stitch square for Billy S's quilt
Stitched by: Ann (+)
Submitted: Mar 2025

Cross stitch square for Billy S's quilt
Stitched by: EE(Beth)Filmer (+)
Submitted: Feb 2025

Cross stitch square for Billy S's quilt
Stitched by: Eileen (+)
Submitted: Feb 2025

Cross stitch square for Billy S's quilt
Stitched by: Jeanne (+)
Submitted: Feb 2025

Cross stitch square for Billy S's quilt
Stitched by: Jodie Balaam (+)
Submitted: Dec 2024

Cross stitch square for Billy S's quilt
Stitched by: Julie Robbins (+)
Submitted: Nov 2024

Cross stitch square for Billy S's quilt
Stitched by: Julie Robbins (+)
Submitted: Feb 2025

Cross stitch square for Billy S's quilt
Stitched by: Kay Parke (+)
Submitted: Mar 2025

Cross stitch square for Billy S's quilt
Stitched by: Laura Brown (+)
Submitted: Feb 2025

Cross stitch square for Billy S's quilt
Stitched by: Leanne Malcolmson (+)
Submitted: Mar 2025

Cross stitch square for Billy S's quilt
Stitched by: Nicola (+)
Submitted: Feb 2025

Cross stitch square for Billy S's quilt
Stitched by: Sue (+)
Submitted: Jan 2025


Card

Card for Billy S
Stitched by: Nicola Bailey

Biography

Billy started walking later than normal and always had trouble with his balance and picking his feet up when walking, but we just thought all kids are different and he’ll get there.

He started school a month before his 4th birthday and one day his teacher asked if he had seen a doctor about his legs and the way he walks, and it hadn’t occurred to us before that, that there may be a problem. We went to see the GP who thought he may have hypermobility, so we were referred to physio. We finally got a physio appointment after 4 months, and they ordered blood tests. The tests showed a problem with his muscles, and 3 weeks later we had a diagnosis of Duchenne. We had never heard of it, but after some research our world came crashing down. Realising that this was a muscle wasting disease giving our gorgeous boy a much shorter life span than he deserves.

Despite all this he's a very happy boy, he doesn’t worry about not keeping up with his friends, enjoys his wheelchair that we use for days out. He takes his daily medications with a smile, and doesn’t complain about the constant hospital appointments, blood tests, physio, scans and even sleep studies. As a family we take each day as it comes, and try not to worry too much about the future for him.


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