LoveQuiltsUK - Owain C's quilt

Owain C's quilt (Quilt Completed)

Born:	2004
Illness:	Elhers danlos syndrome
Theme: Mixture Quilt delivered: 26th Jan 2023

Thank you

Could you pass on my thanks to those who made the quilts, the kids loved them and have them on their beds.

Finished photos

Quilted by: Sandra (Beds)

Individual squares

Stitched by: C McDonald (+) Submitted: Jul 2022	Stitched by: Jan G (+) Submitted: Aug 2022
Stitched by: Jodie Balaam (+) Submitted: Jul 2022	Stitched by: Julie Edgcumbe (+) Submitted: Oct 2022
Stitched by: Lorna Simpson (+) Submitted: Sep 2022	Stitched by: Marilyn Foyle (+) Submitted: Sep 2022
Stitched by: Paula Dewar (+) Submitted: Aug 2022	Stitched by: Roisin (+) Submitted: Oct 2022
Stitched by: Sandra (+) Submitted: Jul 2022	Stitched by: Seren Senior (+) Submitted: Sep 2022
Stitched by: Sue Torode (+) Submitted: Sep 2022	Stitched by: Val Gilbert (+) Submitted: Jul 2022

Card

Stitched by: Anne Berg Gjolberg

Biography

Owain was diagnosed with Ehlers Danlos Syndrome in 2019 at the age of 15 but struggled with a lot of pain for years before this.

Owains EDS manifests itself in numerous ways and we first realised there was something wrong when he was a baby and struggled to tolerate any form of dairy food, and from the age of 5 when he complained of unexplained pain. Years of trial and testing eventually led to a diagnosis of EDS following his father and younger sister being diagnosed with the same condition.

The main symptoms Owain experiences are globalised pain and digestive issues.

To help manage his symptoms Owain keeps himself tremendously fit and loves to run, regularly coming first in his local parkrun. His favourite activity is running in the Lake District mountains followed by a dip in a lake to cool off!