Ms Maisie came into the world with a bang and a crash trolley nearby. We didn’t know till she was born that she had two holes in her heart and that her lungs were working twice as hard to compensate for her little heart. She was very sick and whisked away to Neonatal Intensive care as soon as her cord was cut. I only saw her little cheek before she was transferred out the door. We were also told that they believed she had Down’s syndrome.
Ms Maisie spent 5 months in hospital returning home for 1 week before being re admitted to our local children’s ward where she required oxygen to help her until we got the call to go to Birmingham Children’s Hospital and leave her two big brothers with their grannies. So we left Northern Ireland and Maisie had open heart surgery to fix a VSD and a ASD two holes in her heart and pulmonary hypertension and PDA.
Our little girl had global developmental delay and had lots of appointments -,cardiology & physio, Occupational therapy plus Speech & language therapy, Dieticians, paediatric consultants, eyesight, hearing. Maisie didn’t sit up until after 2 years of age and started taking steps at age 7 years.
She is a true fighter. Also had her blood not clot in recent years - this is called ITP, and just recently she has been given a diagnosis of autism.
Our girl is amazing she is a shining light to all who meet her and a fab mischievous character. She loves to dance even though her mobility doesn’t allow her to do this on her own. Everyone who meets her loves her and she will get you to dance.