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LoveQuiltsUK - Libby S's quilt

Libby S's quilt    (Quilt Closed)

Illness: Occiptal Encephalocele.

Theme: Disney Princesses

Date opened: 11th Jan 2023
Date closed: 14th Jan 2023
Deadline: 26th May 2023

Photo of Libby S

Theme details

Disney Princesses - Some Butterflies on the label

Child Interests

Libby loves textures, soft things and noisy things. She loves animals, music and listening to Disney films.
She is blind so doesn’t have a favourite colour.


Libby was prenatally diagnosed with a giant occiptal encephalocele at 21 weeks. This is a hole in the back of her skull in which her brain & CSF fluid leaked out into a sac on the back of the head. This left her incompatible with life.

However. Libby was born alive, she had her operation at 4 days old to remove the sac on her head, her MRI showed that the rest of her brain inside her head had not developed normally, it was damaged with parts missing.

Libby also developed hydrocephalus and has a VP shunt. She had seizures at birth and is on regular medication. She also has obstructive breathing because of her dysplastic brain stem and uses a nasopharyngeal airway. Libby requires suctioning and feeding into her gastrostomy.

Libby is nearly 3 years old, she cannot walk, sit and is severely visually impaired. However, she finds joy in her life and all things funny! She enjoys rolling over and noisy toys. Her favourite movie is Encanto.


1.Belle (with rose border) from LQUK FilesStitcher: Alison Forsyth, Aberdeen , UK
In Progress

2.LQ files by Merete Cinderella Princess portrait Stitcher: Angie, Belper, UK
In Progress

3.From LQ Files ArielStitcher: Diana Lettice, Spalding, UK
In Progress

4.Princess Jasmine by Merete from LQUK filesStitcher: Alison, Ormskirk, UK
In Progress

5.Aurora with castle in heart from LQUK files Stitcher: Karen Burton, Peterborough, UK
In Progress

6.Chart in a free magazine with world of cross stitching from several years ago Snow White's head and shoulders in a circular wreath with rosesStitcher: Carol Ayling, Copthorne, UK
In Progress

7.4 Disney princess portraits by Merete (LQ files)Stitcher: Emma, Crediton, UK
In Progress

8.Princess portrait of Snow White by Merete LangsethStitcher: Paula Dewar, Glasgow, Scotland
In Progress

9.LQ files Mirabel from EncantoStitcher: Sharon Hill, Billinge, Wigan, UK
In Progress

10.Old pattern I have from many years ago (possibly Dimensions). Belle holding rose and the design features Mrs Potts and Chip. Stitcher: CGH, Edinburgh, Scotland
In Progress

11.Pattern from LQ files by Merete Anna from FrozenStitcher: Marilyn Foyle, Biggleswade, UK
In Progress

12.Label Stitcher: Leanda Vickers, Oldham , England
In Progress

Squares received

None yet. (Quilt opened on 11th Jan 2023)

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