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LoveQuiltsUK - Darcey S's quilt

Darcey S's quilt    (Quilt Closed)

Illness: Dravet Syndrome

Theme: Disney Princesses

Date opened: 3rd Apr 2024
Date closed: 3rd Apr 2024
Deadline: 26th Aug 2024

Photo of Darcey S

Child Interests

Darcey loves anything to do with Princesses. She knows all of their names and has all the dolls and dressing up outfits.

She is a very girly girl too so bright colours, pinks, red yellow


Darcey was born a healthy little girl, but it wasn't until she had her 1st set of immunisations that she had her 1st seizure due to having a high temperature.

Dravet syndrome is a severe form of childhood epilepsy. Darcey can have up to 5 different types of seizures which are usually due to her being unwell or when her temperature changes. Darcey's seizures include tonic clonic (jerking), focal and absence. She needs a carer with her at all times and has to carry around her life-saving medicine Buccal midazolam and oxygen.

As well as Dravet syndrome, Darcey has autism and severe development delay. Her core is weak and her balance and gait is unsteady but she mobilises independently.

Over her 8 years she has had numerous seizures but always remains such a happy loving little girl.

Darcey has not had a tonic clonic seizure for nearly 14 months now which is amazing considering she was having them on a weekly basis.


1.Snow White with apple from LQUK filesStitcher: Alison, Ormskirk, UK
In Progress

2.Walt Disney Characters book. Sleeping Beauty with bird on her handStitcher: Pauline, Broughton, UK
In Progress

3.Disneys Purses Fit for a Princess Head and shoulders of JasmineStitcher: Jeanne, Pennsylvania, USA
In Progress

4.By Merete Langseth in the LQ files Cinderella happily ever after Stitcher: Paula Dewar, Glasgow, Scotland
In Progress

5.From Love Quikts Princess Aurora portraitStitcher: Fiona B, Grangemouth, uK
In Progress

6. Awaiting approval:
Happy Ever After Series from files by Merete Happy Ever After Series Belle and Adam
Stitcher: Sandra, Shefford, England

7. Awaiting approval:
Happily ever after by Merete Snow White and her Prince
Stitcher: Jan G, Hull, UK

8. Awaiting approval:
Princess Portrait Anna from LQ files
Stitcher: Lorna Simpson, Southampton, UK

9. Awaiting approval:
LQ files by Merete Aurora and Prince Phillip happily ever after
Stitcher: Ann, Billericay, UK

10. Awaiting approval:
Princesses SAL pattern via LQUK
Stitcher: Gemma McKnight, Southampton , England

11. Awaiting approval:
Ariel in clam shell
Stitcher: Emma, Crediton, UK

12.Awaiting approval: Label
Stitcher: Lucy, London, United Kingdom

Squares received

None yet. (Quilt opened on 3rd Apr 2024)

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