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LoveQuiltsUK - Destiny W's quilt

Destiny W's quilt    (Quilt Closed)

Born:2022
Illness: Quadriplegic cerebral palsy, dystonia, microcephaly, epilepsy, infantile spasms, West syndrome, HIE grade 3, severe sight impairment

Theme: Various characters

Date opened: 20th Apr 2024
Date closed: 18th May 2024
Deadline: 26th Aug 2024

Photo of Destiny W

Theme details

Various characters - Elmo, Sesame Street, the Gruffalo, Minnie Mouse, Ariel & Sebastian (little mermaid), Frozen, Cinderella, Daisy Duck.

Perhaps some sealife on the label might be nice?



Child Interests

Elmo, the Gruffalo, Sesame Street, Minnie Mouse, Ariel & Sebastian (little mermaid), dancing fruit, Frozen, Cinderella, different textures (she’s a very sensory seeker), opera music, pink, purple, silver, red, marine animals (she loves a trip to the sea life centre), Daisy Duck, leopard print (I think it’s the contrast in the two colours catches her eye)


Biography

Destiny was born prematurely. When she was born there were no signs of life and she had to be intubated until she started breathing on her own. MRI scans showed severe brain damage and Drs said Destiny wouldn’t be capable of anything. Destiny defied all the odds and was discharged less than 2 months after being born, feeding from a bottle.

Unfortunately things changed and she was diagnosed with infantile spasms, regressed and was NG fed and on lots of medication. Destiny has had lots of ups and downs throughout her little life.

Destiny had Peg surgery as her bottle feeding abilities never came back, her seizures developed into West syndrome and even on several types of seizure medications they are uncontrolled.

Recently Destiny stopped breathing, went into cardiac arrest and needed 20 minutes of CPR and then went into status epilepticus and I was told to prepare to lose her but my strong girl proved them wrong again and a week later was discharged from hospital. Since this big event Destiny has majorly been suffering with dystonia and we have many hours of an unsettled baby in lots of pain. We are trying multiple medications to try and help her but so far medication isn’t having an affect.

Destiny loves her blankets, she always has done from being a tiny baby. It helps to calm her down so I can’t wait for her to have a special handmade blanket for her to snuggle up with.



Patterns


1.Princess Portrait Elsa by Merete Langseth for Love Quilts Elsa from FrozenStitcher: Fiona B, Grangemouth, uK
Received

2.LQ Files by Merete Langseth Minnie Mouse 3D 19 colours From Mickey Mouse Club HouseStitcher: Marilyn Foyle, Biggleswade, UK
Received

3.Arian in a clam shell from LQ filesStitcher: Ellie, London, UK
Received

4.Minnie Mouse with ice cream from LQUK filesStitcher: Alison, Ormskirk, UK
Received

5.Daisy Duck and Minnie Mouse on the BeachStitcher: Sylvia, Clacton, England
Received

6.LQ files Gruffalo childStitcher: Emma Robson, Doncaster, England
Received

7.Minnie mouse in a heart.Stitcher: Debbie May, Worthing, West Sussex, UK
In Progress

8.Cinderella portrait on diamond background Stitcher: Emma Swift, Aberdeen, UK
In Progress

9.Ariel with castle in heart from LQUK files Stitcher: Karen Burton, Peterborough, UK
In Progress

10.LQ pattern by Deborah Desmond Clarke. Close up of Gruffalo in a green circle Gruffalo close up in a green circle Stitcher: Gabriele Pearson, Cromarty, UK
In Progress

11.Disney Dimensions Kit. ‘Make your own Magic’ Cinderella.Stitcher: Nicky, Mytchett, UK
In Progress

12.Label Stitcher: Miss Debbie Elkington, Boston, Lincs, UK
Received


Squares received

Cross stitch square for Destiny W's quilt
Stitched by: Miss Debbie Elkington
Submitted: May 2024

Cross stitch square for Destiny W's quilt
Stitched by: Fiona B
Submitted: May 2024

Cross stitch square for Destiny W's quilt
Stitched by: Marilyn Foyle
Submitted: Jun 2024

Cross stitch square for Destiny W's quilt
Stitched by: Ellie
Submitted: May 2024

Cross stitch square for Destiny W's quilt
Stitched by: Alison
Submitted: Jun 2024

Cross stitch square for Destiny W's quilt
Stitched by: Sylvia
Submitted: Jun 2024

Cross stitch square for Destiny W's quilt
Stitched by: Emma Robson
Submitted: May 2024


Card

Card for Destiny W
Stitched by: Nicola Bailey

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