BiographyStanley was born early and required light therapy from birth. He never reached any of his early milestones and was a sleepy baby. He fed by setting a clock every three hours as he was never hungry.
When Stanley went to pre-school they noted he was behind his peers. Stanley was the youngest boy of 4 children therefore initially felt this was normal as a lazy last baby! However, once Stanley went to school, the teachers also expressed their concerns and I requested he see a paediatrician. At this point Stanley was behind in all of his physical and educational milestones and other professions such as physiotherapy, occupational therapy and speech and language therapy were involved. The paediatrician took one look at Stanley and stated she wanted him to have a genetic test, one of which looked for Noonan Syndrome. Stanley then received the diagnosis.
Noonan Syndrome has many links to other conditions and Stanley has a range of difficulties from a heart condition, learning needs, short term memory issues, mobility issues, short stature, hypermobility and many more.
Stanley has an EHCP and now goes to a special school for children with mild to medium learning needs. He has and will continue to suffer with his health and education needs. However, Stanley is the most happy child anyone could ever meet and I'm so incredibly proud of him.
|
