Aaron A's quilt    (Quilt Completed)

Thank you

Aaron received his quilt and we love, love, love it!! He's been struggling to sleep at night recently but this has turned into a magic quilt! We name the characters every night and he tells me every morning that he loves it!! Thank you so much everyone who had a part in the making of such an amazing thing.

Finished photos

Individual squares

Fabric

Card

Stitched by: Anna Berg Gjolberg

Biography

Infarcts (stroke) occurred around day 26 of life. Aaron started having focal seizures lasting 10-30 minutes every hour for 16 hours. Medication then stopped them. After a year he began to have tonic clonic and complex partial seizures. In the course of 18 months he was blue lighted nearly 20 times and needed support and medication to come out of seizures that were lasting an hour or more. Feb 2014 he had a 5 hour seizure resulting in him being intubated and sedated and sent to intensive care at Great Ormond Street. He began walking at 2 1/2 years. He is now 5 but cognitively around 2 years. He goes to a school for severe learning difficulties. He is surpassing what his consultants thought would be possibly due to the amount of brain damage, most lobes are affected, but he is still severely effected. Especially in speech and language. He also struggles with his behaviour and emotions and understanding of danger. He has many autistic traits and is currently going through the assessment process. He's had 2 MRIs and awaiting his 3rd, a CAT scan and 3 EEGs, awaiting his 4th. He's had approx 30 hospital admissions, many of them in High Dependancy. We are still struggling to get his seizures under control however they are now occurring less often.