Tom M's quilt (Quilt Coming Soon)
Superheroes - Especially Superman
Tom loves superheroes and is known as Super Tom around the Glasgow hospital he attends regularly as he has his own superhero cape he wears to surgery. He is a very busy boy who loves movement and going fast, and being out and about. He loves the garden, trees and plants and being outdoors exploring. He likes bright bold colours, sparkly things and exploring different textures. He loves fabric and will rub and explore tops and tshirts to feel the patterns and designs. He is really interested in touch and the feel of things, his lack of his hearing sense has really brought out his tactile awareness so he will rub and use his whole body to explore fabrics.
We had no ante natal diagnosis for Toms medical issues so it was a shock when he arrived by emergency section in November 2012. He has a range of complex medical issues including a severe cardiac defect with a piece of his heart missing, was born without an oesophagus so unable to swallow, profoundly deaf with no audio input at all, as well as other mobility and immune problems. We spent 11 of the first 14 months of Toms life in Glasgow Childrens hospital undergoing various complex and life saving surgeries. We were told many times Tom may not make it, he often baffled the doctors and specialists. But thankfully he was brave and determined and we got to take him home properly in January 2014.