Scott H's quilt (Quilt Completed) |
| Born: | 2006 |
| Illness: | Myotubular myopathy
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Theme: Space
Quilt delivered: 4th Feb 2019 |
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Thank youHe absolutely loves it and the smile on his face was priceless. It's perfect, thank you so much.
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Finished photos
Quilted by:
Sandra (Beds)
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Individual squares
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Stitched by:
Diane
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Submitted: Aug 2018
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Stitched by:
Gail
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Submitted: Aug 2018
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Stitched by:
Heather
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Submitted: Aug 2018
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Stitched by:
Jenny
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Submitted: Oct 2018
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Stitched by:
Julie Tavares
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Submitted: Dec 2018
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Stitched by:
Karen
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Submitted: Oct 2018
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Stitched by:
Karen Stephenson
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Submitted: Jul 2018
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Stitched by:
Linda Cropper
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Submitted: Sep 2018
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Stitched by:
Nicola Hargreaves
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Submitted: Aug 2018
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Stitched by:
Ruth Horn
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Submitted: Aug 2018
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Stitched by:
Sally
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Submitted: Jul 2018
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Stitched by:
Sarah
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Submitted: Nov 2018
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Card
Stitched by: Jill Smith |
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BiographyScott is now 11 years old.
When Scott was a month old we got the devastating news that he has x-linked myotubular myopathy. Scott has been 24 hour ventilated since birth, he had a tracheostomy and gastrostomy put in at 6 months old.
Scott spent 19 months in hospital whilst training for ourselves and a care team was put in place to help care for Scott at home. This was really difficult as we also had a 17 month old baby at home when Scott was born. Since being home from 19 months, Scott has spent long periods of time in hospital due to various illnesses and undergoing various operations.
Scott is currently doing really well and is in school full time with 1 to 1 care with him at all times whilst there. He's such a happy, quirky and amazingly beautiful young boy. He has 2 siblings a brother and a sister and has a very close relationship with them both. Scott is due to have spinal surgery soon as he has scoliosis and kyphosis but I'm sure he will bounce back and battle on as he always does with a huge smile on his face.
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