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LoveQuiltsUK - Ami-Grace's quilt

Ami-Grace's quilt    (Quilt Closed)

Born:June 2007
Illness: BOR syndrome, Hydrocephalus, Hypotonia, cerebral palsy, epilepsy

Theme: Vehicles and Tigers

Date opened: 8th Sep 2018
Date closed: 9th Sep 2018
Deadline: 26th Jan 2019

Photo of Ami-Grace

Theme details

Vehicles and Tigers - Loves cars, trucks, buses and trains - and tigers :)



Child Interests

Ami-Grace, nickname Cub, LOVES cars, trucks, buses and trains. She loves anything with wheels!

She is a very colourful child, living a very vivid life so will always be in bright colours! Her favourite colours are purple, pink, yellow and green but she’s basically a rainbow child, very bold and vibrant. She also loves tiger print, I think it’s the contrasting black and orange?
She’s a girly tomboy!


Biography

Ami-Grace was born at 25weeks gestation. An extremely premature baby, she had a brain bleed at 24hours old and was given a 10% chance of survival. Ami-Grace miraculously survived but it wasn’t without it’s struggles. She spent six months in neonatal intensive care and suffered many complications, including bowel surgery and eye surgery.

Ami-Grace came home on oxygen and continuous tube feeds. She was a very poorly baby, I was warned she’d end up back in hospital, that things would be tough, that nobody knew what she’d be capable of.
As the years passed, Ami-Grace coined the nickname ‘Cub’ because she fought like a tiger, and despite the severity of her disabilities and the surgeries, procedures and torture she endured, she was such a happy child. Even during regular admissions to hospital for pneumonia, as soon as she felt well enough she’d be laughing!

She learned to smile, learned to sit and at aged 7 even learned to walk! She was a medical marvel, a testament to strength and determination. With a smile that could light up a room and the tenacity of a tiger, she took on the world and won.

A couple of years ago, things changed. Cub started losing skills. The epilepsy she'd had when she was little got much worse, she lost the ability to walk and was showing signs of pain and distress. Nobody could figure out what was wrong. As her medication went up and life got more and more scary, I grew frantic.

Eventually, one of her doctors suggested she have a brain MRI scan to see if there was a problem. I expected the scan would be clear, we all did I think. It was January this year the results came in. Cub had ‘active hydrocephalus’ (fluid on the brain) that had been there for a long time. We were all shocked, Cub must have been in incredible pain, it was a miracle she was alive.

In March of this year she underwent brain surgery to place a shunt, this drains the fluid from her brain into her abdomen, this reducing the pressure in her head. Shunts are not without their problems, Cub’s already sensitive organs are taking some getting used to it, complications can be life threatening so we live our lives day by day.
Some days her smiles are like they used to be and they are the most wonderful days.

Right now we’re concentrating on living happily, even if it isn’t ever after.



Patterns


1.Train silhoette in purple Stitcher: Nicola, Elland, UK
In Progress

2.Cross stitch cute animals Tiger profile in round borderStitcher: Jade Kenny, Ballinasloe, Ireland
In Progress

3.Awsomepatternstudio Mandela tigerStitcher: Nancy Lowe, Tamworth, UK
Received

4.Geometric pattern - tiger faceStitcher: Emma Swift, Aberdeen, UK
Received

5.Alita designs Tiger faceStitcher: Ann, Billericay, UK
In Progress
www.alitadesigns.com/?p=3

6.New Stitches number 71 Tiger's faceStitcher: Sue Torode, Farnborough, UK
In Progress

7.Cross Stitcher Happy Camper in orangeStitcher: Elaine Dixon, Athens, Greece
In Progress

8.Bothy Threads 'Wheely Fun' - bus, lorry, diggerfrom this design, plus some smaller components. Bus & lorry on road, plane overhead, digger in foregroundStitcher: Marilyn, Birmingham, UK
In Progress

9.Etsy, AnImCrossStitch Pink Ice Cream TruckStitcher: Merete, Allerød, Denmark
In Progress
https://www.etsy.com/dk-en/listing/532688106/ice-c...

10.Https://www.cyberstitchers.com Monster Truck - will adapt the colours to rainbow coloursStitcher: Kaz Bowen, Wakefield, UK
Received
https://www.cyberstitchers.com/free_patterns/patte...

11.Tiger from cross my heart inc.Stitcher: Heather Joyce, Sandiacre, UK
In Progress

12.Label Stitcher: Miss Debbie Elkington, Boston, Lincs, UK
Received


Squares received

Cross stitch square for Ami-Grace's quilt
Stitched by: Miss Debbie Elkington
Submitted: Oct 2018

Cross stitch square for Ami-Grace's quilt
Stitched by: Nancy Lowe
Submitted: Nov 2018

Cross stitch square for Ami-Grace's quilt
Stitched by: Emma Swift
Submitted: Nov 2018

Cross stitch square for Ami-Grace's quilt
Stitched by: Kaz Bowen
Submitted: Oct 2018


Card

Card for Ami-Grace
Stitched by: Karen Stephenson

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