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LoveQuiltsUK - Evelyn K's quilt

Evelyn K's quilt   (Quilt Coming Soon)

Illness: CDKL5 disorder

Theme: Flowers and Fairies

Quilt will open soon, keep checking back!
Photo of Evelyn K

Theme details

Flowers and Fairies - Pinks and purple are best for visual impairment reasons.

Child Interests

Evelyn loves being outside in her chair and going for walks. She loves feeling the sun on her face, wind in her hair and bumps on the road.
Evelyn has cortical visual impairment and we think she sees pinks and purples best


Evelyn started having seizures when she was just three weeks old. Despite trying many drugs, the ketogenic diet and VNS surgery her seizures remain a daily occurrence .
Despite everything she goes through Evie faces every day with a smile , we don’t count milestone but delight in every ‘inch stone’ Evelyn achieves.

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