Theo W's quilt    (Quilt Completed)

Thank you

Thanks so much he loves it. Been trying to get a photo of Theo with the quilt, but he doesn't like his face, so had to get one of him sleeping under it

Finished photos

Individual squares

Card

Stitched by: Marie Firth

Biography

Theo is 10. He was born with a facial port wine stain. It wasn’t until he failed his eye exam at school that we knew things were not as they should be. He was found to have glaucoma alongside his migraines. He was then tested for Sturge-Weber syndrome and he was diagnosed with type 2. Theo has had a number of operations to date. He’s had 5 lots of laser to lighten his port wine stain and he has had a shunt fitted in his eye to reduce the pressure. He’s lost a little of his visual field. The shunt hasn’t been straightforward to date and he has had several operations on his eye to get the shunt working correctly, each one as traumatic as the ones before.

Theo suffers from anxiety to a point where he struggles to leave the house at times and it really affects family days out and family time. He sees several different consultants and a dietitian for his weight issues.

He is a happy boy most of the time and he’s happiest when he’s looking after his tropical fish.