Christopher H's quilt    (Quilt Completed)

Thank you

Thank you so much for Christopher’s quilt. It’s absolutely beautiful.

Finished photos

Individual squares

Card

Stitched by: Sandra

Biography

Christopher has an extremely complicated history which would take far too long to explain without boring everybody! After initially suspecting he had cerebral palsy, it became apparent once he had spinal surgery at the age of 8 that this wasn’t actually the case. He suffered from a massive deterioration in symptoms (this doesn’t happen with CP) and lost all his movement, even the ability to breathe, which meant that he ended up on a ventilator. This period on life support then led to a further deterioration which started the process of his digestive system failure. Doctors were stumped for a diagnosis as every single test came back with negative results. Eventually, as both genetic testing and the testing for mitochondrial disease developed, he finally received a diagnosis in January 2019. He has a ‘never been seen before’ mutation on one of his genes which causes the mitochondria in his cells to clump together and therefore work ineffectively. Christopher will continue to deteriorate and has a shortened life span, although nobody can give us an idea of how long this may be as they’ve never seen his particular problem before. He is physically very weak and currently spends 16 hours per day in bed so a LoveQuilt would be very much loved and used! Despite all this, Chris is extremely happy and lights up our lives. He has a wicked sense of humour and can charm anybody he meets within seconds. He loves Everton Football Club and has a season ticket, attending all the matches he is able to. He also loves emergency vehicles (despite having had several rides in ambulances) and likes watching an old Channel 5 programme called Emergency Bikers which follows police and paramedic bikers.