Ibby B's quilt (Quilt Coming Soon)
Disney movies, dinosaurs and music. Bright colours due to his visual impairment.
Ibrahim (Ibby) was born at 26 weeks and at 36 hours old suffered an IVH grade 4 and huge pulmonary hemorrhage. MRI scans later revealed he also had multicystic periventricular leukomalacia, a large porencephaly cyst and microcephaly. Ibby spent 4 months in special care. He had very rocky start to life and was placed with foster carers at 11 months old. We adopted him when he was two years old. Ibby has a very unsafe swallow and had a gastrostomy fitted but his stomach started to fail and 12 months ago we went to Jej feeding. Ibby has epilepsy and this is poorly controlled having tried numerous medications and the Ketogenic diet. Ibby is non mobile, he has good head control. He is also non verbal and has a visual and hearing impairment. Ibby has quadriplegic cerebral palsy, he has limited use of his left arm and left index finger which he puts to excellent use in flicking his glasses off. He has limited hearing in his right ear only and wears a hearing aid. Ibby has had surgery on his right hip twice and is currently on the waiting list to have extensive surgery on his left hip. Like his brother Mac, Ibby is regularly hospitalised with respiratory issues although Ibby tends to recover quickly and without the aggressive treatment Mac needs.