Fletcher T's quilt    (Quilt currently being assembled)

Biography

Fletcher was born 2 weeks early due to his mum having gestational diabetes. He was a small baby but otherwise healthy. He had been to his Gp various times throughout his first few months suffering from reflux which he still suffers with today at almost 5 years old.

At 5 months, a health visitor was asked to review him due to parental concerns with his development. It wasn't until he was 10 months old that the health visitor finally agreed to refer him to physio, Salt, OT and a paediatric doctor.

Fletcher underwent various tests including Mri scans & blood tests and was finally given a genetic diagnosis 15q11.2 when he was 17 months old. Little is known about this condition but Fletcher's symptoms matched other children's so he was discharged from genetics.

Sadly Fletcher failed to make much progress. At 4 years old he still can't walk or talk, play independently, communicate or feed himself etc. He had further genetic testing done which came back with the new diagnosis STXBP1. Again little is know but a group of other parents on Facebook have been extremely supportive by sharing stories of their children and Fletcher seems to fit well within their diagnosis symptoms.

Fletcher now attends a special school where he really enjoys the intense interactions and support from his assistants.

Patterns

Squares received

Card

Stitched by: Marie Firth