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LoveQuiltsUK - Alanna B's quilt

Alanna B's quilt    (Quilt Closed)

Illness: Cerebral palsy asymmetric quadriplegia and epilepsy.

Theme: Stars, mermaids and rainbows

Date opened: 31st Mar 2021
Date closed: 2nd Apr 2021
Deadline: 26th Jul 2021

Photo of Alanna B

Child Interests

Alanna’s absolute favourite things in the world are stars, mermaids and rainbows.
She also likes colourful fish eg Dora and Nemo and flowers. She also likes butterflies and Frozen 2.
Her favourite colour is purple followed by pink and yellow.


My daughter Alanna was born in 2005 weighing 1lb 11ozs. She was a premature baby born at 24 weeks but worse was yet to come. It would also mean I wouldn’t be able to hold my baby even once until Alanna was 6 weeks old and that cuddle lasted for 5 precious minutes.

Alanna never cried or made any sound when she was born as she was simply too tiny. Alanna was whisked away to the scbu and the next time I saw her she was in an incubator surrounded by wires and monitors. She was on a ventilator and the moisture levels in the incubator were set at 98% to try and help her skin.
During the second night Alanna had a massive bleed on the brain. The only thing anyone could do was sit, wait and regularly monitor everything. I wouldn’t leave her side and on day 3 the bleeding had stopped. Now we had to wait and see what damage had been done. It was a huge blow, half her brain (her left side) had been so damaged and died, there was also some slight damage to the right frontal area. On top of all this lines, cannulas, long lines were failing as Alanna’s veins were so tiny. She also had to be under uv lights for over 2 weeks to treat jaundice. My mum and grandads passed away when I was ten years old and I remember talking to them in my head asking for their help to get Alanna through all this because I knew we needed more than a miracle at this point. I still think to this day they helped to watch over her.

We lived in the hospital for the next few months. Alanna’s weight had dropped down to 690 grams. We battled getting Alanna off the ventilator onto cpap, she would do it but tired so easily so it was back on the ventilator. Any little infection Alanna seemed to pick up really took its toll on her but she never gave up fighting. Alanna also had laser eye surgery on both eyes. She also needed a PDA duct in her heart closing but we was being referred to a children’s specialist hospital for that.

Finally we got home. Alanna had not only come off the ventilator and cpap she had also managed to come off oxygen. She had to sleep in something special as she couldn’t lay flat as her Sats would drop too low. Life was strangely quiet when we got home and took a while to adjust to. Alanna had to be gravity fed every two hours day and night through a NG tube because she couldn’t tolerate normal sized feeds. I was very tired and soon learned to cat nap when I could. Alanna was also diagnosed with epilepsy.

Over the next few years Alanna has faced many challenges in her short life. All the surgeries include heart surgery, corrective surgery for scoliosis of the spine, hip surgery, mini button being fitted, laser eye surgery and Botox. She’s never once complained.
Alanna uses Makaton and has even made up some of her own signs as she can’t use both hands. She also started to say words when she was around 11 and half years old.
Alanna’s such a kind, caring, loving and beautiful young lady. She views the world through such innocent and happy eyes. She loves her younger sister to the stars and back. Best of all she’s my special girl.


1.Valenti craft. Etsy Mermaid Stitcher: Jan G, Hull, UK
In Progress

2.SevenDreamsShop from Etsy Mermaid with pink hair & turquoise tailStitcher: Nicky, Mytchett, UK
In Progress

3.Lucie Heatons Mermaid (adapted) Stitcher: Diane, Middlesex, UK
In Progress

4.Own design. Stars in a heart.Stitcher: Miss Debbie Elkington, Boston, Lincs, UK
In Progress

5.Durene Jones Mermaid and three fishStitcher: Ann, Billericay, UK
In Progress

6.Watercolour mermaid by climbing goat designs Multi coloured silhouette of a mermaidStitcher: Sarah, St. Albans, UK
In Progress

7.Free DMC pattern Make a wish surrounded in starsStitcher: Emma Edwards, Hawkesbury Upton, UK
In Progress

8.Free DMC pattern. Circle of stars with the words Follow the Stars in the centre. Stitcher: Diana, Sussex, UK
In Progress

9.Rainbow Maypole by Climbing Goat Stitcher: Val Gilbert, Coningsby , UK
In Progress

10.Boho Rainbow by Climbing Goat DesignsStitcher: Jodi Maple, Niagara Park, Australia
In Progress

11.Freebie on DMC website Star gazerStitcher: Lindsay, Northwich, UK
In Progress

12.Label Stitcher: Jodie Balaam, Lawshall, England
In Progress

Squares received

None yet. (Quilt opened on 31st Mar 2021)

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