Alfie B's quilt   (Quilt Completed) |
Born: | 2019 |
Illness: | Fibrocartilagenous embolisation
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Theme: Dinosaurs and Ducks
Quilt delivered: 19th Nov 2023 |
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Thank youJust wanted to let you know that Alfie's quilt has arrived! Thank you so much, it is absolutely beautiful!!! Please pass on my appreciation and gratitude to the quilter and stitchers, their work is amazing and has made this little boy very happy! xx
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Finished photos
Quilted by:
Sandra (Beds)
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Individual squares
Stitched by:
Alison Forsyth
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Submitted: Oct 2023
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Stitched by:
Ann
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Submitted: Aug 2023
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Stitched by:
Christine Mennie
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Submitted: Sep 2023
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Stitched by:
Diana
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Submitted: Sep 2023
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Stitched by:
Jodie Balaam
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Submitted: Jul 2023
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Stitched by:
Kelli
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Submitted: Sep 2023
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Stitched by:
Lorna Simpson
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Submitted: Jul 2023
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Stitched by:
Marion
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Submitted: Jul 2023
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Stitched by:
Nicky
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Submitted: Sep 2023
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Stitched by:
Nicola
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Submitted: Jul 2023
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Stitched by:
Roisin
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Submitted: Sep 2023
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Stitched by:
Sandra
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Submitted: Jun 2023
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Card
Stitched by: Sandra |
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BiographyAlfie was born at 34 weeks but had no medical conditions. Aged 3 he was on the pathway for diagnosis of autism and sensory processing disorder. A few months later he had a minor tumble off the sofa (something he'd done countless times before!). Within half an hour he couldn't move his arms so we rushed him to hospital.
After many tests and scans we were given the devastating diagnosis of fibrocartilagenous embolisation, which is similar to a spinal stroke but very rare. There's only 25 other confirmed cases in the whole world. This paralysed him from the shoulders down. He's had a pacemaker fitted to help with bradycardia (low heart rate), a tracheostomy to help him breathe and a gastrostomy to feed him. Following his injury he has developed a condition called autonomic dysreflexia which is fairly common in people with spinal cord injuries and causes dangerously high blood pressure that can be life threatening if left untreated.
Throughout all this Alfie has been an absolute warrior and has shown amazing resilience, facing every obstacle with a smile on his face.
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