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LoveQuiltsUK - Caleb P's quilt

Caleb P's quilt    (Quilt Closed)

Illness: Down's Syndrome and Lennox-Gastaut Syndrome

Theme: Cars

Date opened: 24th Mar 2021
Date closed: 6th Apr 2021
Deadline: 26th Jul 2021

Photo of Caleb P

Theme details

Cars - Especially Lightening McQueen and other Cars characters, and any cars such as race cars etc.

Child Interests

Caleb can't communicate his favourite colour but blues/teals really suit him and that's the colour of his glasses and bedroom.
He loves water!
He likes cars, the noisier the better.
He also likes balls and bubbles. Especially the spikey sensory balls.
Anything musical and lights too.
His swing in the garden is his happy place.


Caleb was a planned home water birth.
As soon as he was born I knew he was different to his brother and sister.
I knew he had Down's Syndrome. Having raised my concerns I was reassured that he was fine but 5weeks later after a blood test it was confirmed he had trisomy 21 - Down's Syndrome.

He thrived until 5months of age where he began having Infantile spasms. Despite many treatments they didn't stop.

At 8months old he spent months in hospital with respiratory issues, he was found to have central sleep apnoea and an unsafe swallow.

He was eventually discharged home on 24hr oxygen, overnight CPAP and a nasogastric feeding tube.

The infantile spasms evolved and he had other kinds of seizures, his infantile spasms became West Syndrome.

He got stronger and weaned onto a mashed diet, his lungs grew stronger and he no longer needed oxygen.

Having tried more medications and 18months of a ketogenic diet and further investigations- EEGs and MRIs, Caleb was diagnosed with Lennox-Gastaut Syndrome.
He stopped the diet as it wasn't effective and with it he managed to lose the nasogastric tube.

In January 2021 Caleb had Brain surgery - Corpus Callosotomy to help with the drop seizures.

Caleb has recovered very well, he still has seizures but they are much less than before.


1.Meretes’s pattern from the files Lightning mcqueenStitcher: Ruth Horn, Co Durham, UK

2.Red sports car front facing Stitcher: Nicola, Elland, UK
In Progress

3.Rusty the tow truck from the cars movieStitcher: Sylvia, Clacton, England
In Progress

4.Ferrari Testarozza - Pat Brown designStitcher: Alison, Ormskirk, UK
In Progress

5.Climbing Goat Designs. Silhouette of racing car. Stitcher: Diana, Sussex, UK
In Progress

6.Own design Sally Carrera from Disney CarsStitcher: C McDonald, Altrincham, UK
In Progress

7.My own design from the files - Lotus 7Stitcher: Pat Brown, Warminster, England

8.From LQ Fles Bugatti chiron Stitcher: Kaz Bowen, Wakefield, UK

9.Red - the fire truck character from CarsStitcher: Emma Swift, Aberdeen, UK
In Progress

10.From LQ files Set of 6 carsStitcher: Lindsay, Northwich, UK
In Progress

11.Fillmore from my stash Fillmore from CarsStitcher: Heather, Littleborough, England
In Progress

12.Label Stitcher: Diane, Middlesex, UK
In Progress

Squares received

Cross stitch square for Caleb P's quilt
Stitched by: Ruth Horn
Submitted: Apr 2021

Cross stitch square for Caleb P's quilt
Stitched by: Pat Brown
Submitted: Apr 2021

Cross stitch square for Caleb P's quilt
Stitched by: Kaz Bowen
Submitted: Apr 2021

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